RT Journal Article
T1 End of life in patients attended by pediatric palliative care teams: what  factors influence the place of death and compliance with family preferences?
A1 Peláez-Cantero, María José
A1 Morales-Asencio, José Miguel
A1 Navarro-Mingorance, Álvaro
A1 Madrid-Rodríguez, Aurora
A1 Tavera-Tolmo, Ángela
A1 Escobosa-Sánchez, Olga María
A1 Martino-Alba, Ricardo
K1 Niños - Enfermedades - Tratamiento paliativo
K1 Pediatría
K1 Cuidados terminales
AB Each year, more than 8 million children worldwide require specialized palliative care, yet there is little evidence available in pediatrics on the characteristics of the end of life in this context. Our aim is to analyze the characteristics of patients who die in the care of specific pediatric palliative care teams. This is ambispective, analytical observational, multicenter study conducted between 1 January and 31 December 2019. Fourteen specific pediatric palliative care teams participated. There are 164 patients, most of them suffering from oncologic, neurologic, and neuromuscular processes. The follow-up time was 2.4 months. The parents voiced preferences in respect of the place of death for 125 of the patients (76.2%). The place of death for 95 patients (57.9%) was at the hospital and 67 (40.9%) was at home. The existence of a palliative care team for over 5 years is more likely to be related to families voicing preferences and their fulfillment. Longer follow-up times by pediatric palliative care teams were observed in families with whom preferences regarding the place of death were discussed and in patients who died at home. Patients who did not receive home visits, when the pediatric palliative care team did not provide full care and when preferences regarding the place of death were not discussed with parents, were more likely to die in the hospital.Conclusions: Advance planning of end-of-life care is one of the most important aspects of pediatric palliative care. The provision of services by the teams and the follow-up time are related to parents’ expressed preferences and the place of death.
PB Springer
YR 2023
FD 2023
LK https://hdl.handle.net/10630/26283
UL https://hdl.handle.net/10630/26283
LA eng
NO Peláez-Cantero, M.J., Morales-Asencio, J.M., Navarro-Mingorance, Á. et al. End of life in patients attended by pediatric palliative care teams: what factors influence the place of death and compliance with family preferences?. Eur J Pediatr (2023). https://doi.org/10.1007/s00431-023-04870-z
NO Funding for open access charge: Universidad de Málaga / CBUA
DS RIUMA. Repositorio Institucional de la Universidad de Málaga
RD 19 ene 2026