RT Journal Article
T1 Impact of pediatric inflammatory bowel disease on caregivers' work productivity: A multicenter study by the SEGHNP
A1 Velasco Rodríguez‐Belvís, Marta
A1 Palomino, Laura
A1 Pujol Muncunill, Gemma
A1 Martin‐Masot, Rafael
A1 Muñoz Codoceo, Rosa Ana
A1 Barrio Torres, Josefa
A1 Navas-López, Víctor Manuel
A1 Martín de Carpi, Javier
K1 Niños - Enfermedades
K1 Niños - Cuidado
K1 Intestinos - Enfermedades
K1 Enfermedades crónicas
K1 Absentismo laboral
K1 Pediatría - Investigación
AB Objectives/Background: Pediatric inflammatory bowel disease (PIBD) posessignificant challenges not only to patients but also to their families, particularlyaffecting the work productivity of caregivers. This Spanish multicenter studyaims to elucidate the extent of this impact.Materials and Methods: A cross‐sectional, multicenter study was conductedbetween February 2021 and June 2023, involving parents or caregivers ofPIBD patients aged 10–18 years. The study utilized the Work Productivity andActivity Impairment (WPAI) questionnaires alongside assessing diseaseactivity and socioeconomic status to quantify work productivity loss and itseconomic implications.Results: The study included 370 patients from 37 centers, highlighting asignificant loss of work productivity among caregivers, especially mothers. Theglobal unemployment rate was notably higher in this group compared tonational averages (22.9% vs. 13.8%), particularly among females (30.7% vs.13.7%), with absenteeism and presenteeism rates (26.4% and 39.9%)significantly impacting the caregivers’ ability to work. The study also identifiedactive disease and treatment with biologics or steroids as risk factors forincreased work productivity loss.Conclusions: Caregivers of children with inflammatory bowel disease faceconsiderable challenges in maintaining employment, with a notable economicimpact due to lost work hours. The findings underscore the need for targetedsupport and interventions to assist these families, suggesting potential areasfor policy improvement and support mechanisms to mitigate the socioeconomicburden of PIBD on affected families.
PB Wiley
YR 2024
FD 2024
LK https://hdl.handle.net/10630/32485
UL https://hdl.handle.net/10630/32485
LA eng
NO Velasco Rodríguez-Belvís M, Palomino L, Pujol Muncunill G, et al. Impact of pediatric inflammatory bowel disease on caregivers' work productivity: a multicenter study by the SEGHNP. J Pediatr Gastroenterol Nutr. 2024; 1-10. doi:10.1002/jpn3.12328
NO Funding for open access charge: Universidad de Málaga / CBUA. This study was supported by the Spanish Society of Pediatric Gastroenterology, Hepatology and Nutrition (SEGHNP), which covered the operational costs of REDCap.
DS RIUMA. Repositorio Institucional de la Universidad de Málaga
RD 20 ene 2026