RT Journal Article
T1 Sustaining the burden”: a qualitative study on the emotional impact and social functioning of family caregivers of patients with psychosis
A1 Villena Jimena, Amelia
A1 Morales-Asencio, José Miguel
A1 Quemada-González, Casta
A1 Hurtado, María M.
K1 Enfermos mentales - Relaciones familiares
K1 Cuidados de larga duración
K1 Fatiga mental
AB Evidence shows that caring for a family member with a psychotic disorder generates a significant emotional impact and repercussions on social functioning. However, this caregiving experience can be influenced by cultural factors. The aim of this study is to explore the experience and perception of a group of family caregivers of patients with psychotic disorders of different durations regarding the emotional and social functioning repercussions of caregiving on them in Andalusia.Three focus groups (28 participants) were conducted. Data were subject to a thematic analysis. Three themes emerged from the data: 1) Emotional invasion; 2) Disruption in the caregiver's life project; and 3) Changes in the family system. Participants reported experiencing sadness, fear, overwhelm, hopelessness, and uncertainty. Caregivers' accounts reflected an interruption of their daily tasks, as well as the need to reformulate plans or goals outside the family life that require long-term commitment, such as professional development or even their residence. The narratives indicated an impact on all roles within the family system, particularly for the mother.The results are consistent with existing research. Healthcare professionals and programs should take into account the costs associated with caregiving in order to minimize them, given the impact it has on both the patient's and the caregivers' health.
PB Elsevier
YR 2024
FD 2024
LK https://hdl.handle.net/10630/31455
UL https://hdl.handle.net/10630/31455
LA eng
NO Amelia Villena Jimena, José Miguel Morales-Asencio, Casta Quemada, María M. Hurtado, “Sustaining the burden”. A qualitative study on the emotional impact and social functioning of family caregivers of patients with psychosis, Archives of Psychiatric Nursing, Volume 51, 2024, Pages 95-101, ISSN 0883-9417, https://doi.org/10.1016/j.apnu.2024.05.015
NO Funding for open access charge: Universidad de Málaga / CBUA
DS RIUMA. Repositorio Institucional de la Universidad de Málaga
RD 20 ene 2026