RT Journal Article
T1 Living with chronicity and complexity: Lessons for redesigning case management from patients' life stories – A qualitative study
A1 Morales-Asencio, José Miguel
A1 Martín-Santos, Francisco Javier
A1 Kaknani-Uttumchandani, Shakira
A1 Morilla-Herrera, Juan Carlos
A1 Cuevas-Fernández-Gallego, María Magdalena
A1 García-Mayor, Silvia
A1 León-Campos, Álvaro
A1 Morales-Gil, Isabel María
K1 Enfermos crónicos - Cuidados de enfermería
K1 Investigación cualitativa
AB AbstractRationale, aims and objectivesCase management is commonly used to provide health care for patients with multiple chronic conditions. However, the most effective form of team organization and the necessary support structures need to be identified. In this respect, patients' views could provide a valuable contribution to improving the design of these services. To analyse the experiences of patients with chronic diseases and of caregivers, in relation to health care services and mechanisms, and to identify means of modelling case management services.MethodsThe method used was a qualitative study based on life stories, and semi-structured interviews with 18 patients with complex chronic diseases and with their family caregivers, selected by purposeful sampling in primary health care centres in Andalusia (southern Spain) from 2009 to 2011.ResultsThree transition points were clearly identified: the onset and initial adaptation, the beginning of quality-of-life changes, and the final stage, in which the patients' lives are governed by the complexity of their condition. Health care providers have a low level of proactivity with respect to undertaking early measures for health promotion and self-care education. Care is fragmented into a multitude of providers and services, with treatments aimed at specific problems.ConclusionsMany potentially valuable interventions in case management, such as information provision, self-care education and coordination between services and providers, are still not provided.
PB Wiley
YR 2016
FD 2016
LK https://hdl.handle.net/10630/39812
UL https://hdl.handle.net/10630/39812
LA eng
NO Morales‐Asencio, J. M., Martin‐Santos, F. J., Kaknani, S., Morilla‐Herrera, J. C., Cuevas Fernández‐Gallego, M., García‐Mayor, S., ... & Morales‐Gil, I. M. (2016). Living with chronicity and complexity: Lessons for redesigning case management from patients' life stories–A qualitative study. Journal of Evaluation in Clinical Practice, 22(1), 122-132.
NO https://openpolicyfinder.jisc.ac.uk/id/publication/7077
NO Consejería de Salud y Familias. Junta de Andalucía
DS RIUMA. Repositorio Institucional de la Universidad de Málaga
RD 21 ene 2026