<?xml version="1.0" encoding="UTF-8"?><?xml-stylesheet type="text/xsl" href="static/style.xsl"?><OAI-PMH xmlns="http://www.openarchives.org/OAI/2.0/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/ http://www.openarchives.org/OAI/2.0/OAI-PMH.xsd"><responseDate>2026-06-08T16:09:50Z</responseDate><request verb="GetRecord" identifier="oai:riuma.uma.es:10630/39753" metadataPrefix="oai_dc">https://riuma.uma.es/rest/oai/request</request><GetRecord><record><header><identifier>oai:riuma.uma.es:10630/39753</identifier><datestamp>2026-02-03T11:21:10Z</datestamp><setSpec>com_10630_2254</setSpec><setSpec>col_10630_37953</setSpec></header><metadata><oai_dc:dc xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:doc="http://www.lyncode.com/xoai" xmlns:oai_dc="http://www.openarchives.org/OAI/2.0/oai_dc/" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://www.openarchives.org/OAI/2.0/oai_dc/ http://www.openarchives.org/OAI/2.0/oai_dc.xsd">
   <dc:title>Quality of Life, Physical and Mental Health of Family Caregivers of Dependent People with Complex Chronic Disease: Protocol of a Cohort Study</dc:title>
   <dc:creator>Marfil Gómez, Raquel</dc:creator>
   <dc:creator>Morales-Puerto, Marta</dc:creator>
   <dc:creator>León-Campos, Álvaro</dc:creator>
   <dc:creator>Morales-Asencio, José Miguel</dc:creator>
   <dc:creator>Morilla-Herrera, Juan Carlos</dc:creator>
   <dc:creator>Timonet Andreu, Eva María</dc:creator>
   <dc:creator>Cuevas-Fernández-Gallego, María Magdalena</dc:creator>
   <dc:creator>Martí-García, Celia</dc:creator>
   <dc:creator>López-Leiva, María Inmaculada</dc:creator>
   <dc:creator>García-Mayor, Silvia</dc:creator>
   <dc:subject>Cuidadores - Salud mental</dc:subject>
   <dc:subject>Estrés (Psicología) - Control</dc:subject>
   <dc:subject>Enfermos crónicos - Cuidado</dc:subject>
   <dc:subject>Nurses</dc:subject>
   <dc:subject>Nursing</dc:subject>
   <dc:subject>Caregivers</dc:subject>
   <dc:subject>Quality of life</dc:subject>
   <dc:subject>Mental health</dc:subject>
   <dc:subject>Complex chronic disease</dc:subject>
   <dc:description>Abstract: Background: informal caregivers have a high risk of su ering from diseases derived&#xd;
from the chronic stress to which they are subjected for their dedication to the care of their relatives.&#xd;
Such stress has a direct influence on the person cared for, mainly a ecting the quality of their care.&#xd;
Therefore, the aim of the present study is to assess the association of caregiving on physical and&#xd;
mental perceived health in family caregivers of dependent adults with complex chronic diseases.&#xd;
Methods: a prospective longitudinal cohort study, with a follow-up period of 36 months (HUELLA&#xd;
cohort). The exposed cohort will be formed by family caregivers of dependent patients with complex&#xd;
chronic pathologies. The unexposed cohort will be taken from the general population adjusted for&#xd;
age, sex and health. Outcome variables will include attendance to health services, consumption of&#xd;
psychoactive drugs, dedication to care (only in exposed cohort), concession of the Act on Promotion&#xd;
of Personal Autonomy and Care for dependent persons (exposed only), perceived physical and&#xd;
mental health, depression level, burden level and new diagnosis of chronic pathology of the caregiver&#xd;
during the study. Results: the expected results will be applicable and will incorporate improvements&#xd;
to the usual health system clinical practice, providing feedback to professionals dedicated to the&#xd;
provision, planning and design of services to family caregivers, as well as to groups and organizations&#xd;
of caregivers. Conclusions: investments in preventing low-quality informal care are key, mainly&#xd;
through early identification and interventions to support caregivers who su er from stress, anxiety&#xd;
or depression.</dc:description>
   <dc:description>Carlos III Health Institute (ISCIII), part of the Spanish Ministry of Economy, Industry and Competitiveness (PI18/00665)</dc:description>
   <dc:description>European Regional Development Fund (ERDF)</dc:description>
   <dc:date>2025-09-03T11:49:42Z</dc:date>
   <dc:date>2025-09-03T11:49:42Z</dc:date>
   <dc:date>2020-10-15</dc:date>
   <dc:type>journal article</dc:type>
   <dc:type>VoR</dc:type>
   <dc:identifier>Marfil-Gómez, R., Morales-Puerto, M., León-Campos, Á., Morales-Asencio, J. M., Morilla-Herrera, J. C., Timonet-Andreu, E., Cuevas-Fernández Gallego, M., Martí-García, C., López-Leiva, I., &amp; García-Mayor, S. (2020). Quality of Life, Physical and Mental Health of Family Caregivers of Dependent People with Complex Chronic Disease: Protocol of a Cohort Study. International Journal of Environmental Research and Public Health, 17(20), 7489. https://doi.org/10.3390/ijerph17207489</dc:identifier>
   <dc:identifier>https://hdl.handle.net/10630/39753</dc:identifier>
   <dc:identifier>10.3390/ijerph17207489</dc:identifier>
   <dc:language>eng</dc:language>
   <dc:relation>Instituto de salud Carlos III/PI18/00665/Calidad de vida, salud física y mental de mujeres cuidadoras familiares de personas dependientes y con enfermedad crónica compleja/ Cohorte huella</dc:relation>
   <dc:rights>Attribution 4.0 Internacional</dc:rights>
   <dc:rights>http://creativecommons.org/licenses/by/4.0/</dc:rights>
   <dc:rights>open access</dc:rights>
   <dc:format>application/pdf</dc:format>
   <dc:publisher>MDPI</dc:publisher>
</oai_dc:dc>
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